Hashimotos Thyroiditis Awareness

powerofpaisley

If you are reading this, it’s because you ARE or you LOVE my people, those of us who suffer from a thyroid disorder.  My specific disease is Hashimotos Thyroiditis.

And I am taking back my life, one step at a time.

What Is Hashimotos Thyroiditis:

97%

Some people who have a thyroid disease, have a simple explanation… their thyroid is working too hard or not hard enough.  They take medication daily to manage it.  Others, may have NO thyroid at all because of cancer or by removing the thyroid to manage the symptoms better.  These people also take medication daily to manage it, but at a higher dose because there is no thyroid function at all.  Then there are people like me, who have an Autoimmune based thyroid disease.  This basically means that my body is actively trying to KILL my thyroid.   Some days, it is a more brutal assault than others.  Unlike other thyroid diseases, I can swing between being HYPER (too much) and HYPO (too little) thyroid from day to day.   I am given the same medications as other thyroid conditions, because honestly modern medicine has no clue how to treat my disease.  They treat the thyroid the best they can, but ignore the autoimmune aspect.

How Does Hashimotos Thyroiditis Affect A Person:

symptoms

In the years since I have been diagnosed I learned a hard, cold, truth.  Hashimotos Patients and their symptoms are like snowflakes.  There are no two alike.  My sister and I, both have the disease and our symptoms are VERY different.  I chose the image above, because it’s a good start.  Hashimotos sufferers will fluctuate between hyper and hypo, so you can have symptoms that fall on either side, or both of that graphic.

Additionally, it is becoming more recognized that once you have an auto-immune disorder, you are more likely to develop MORE AI diseases over your life time.

Hashimotos alone has over 300 symptoms that can affect a person, on any given day… at any given time.  To most, Hashimotos is considered an invisible illness. We look ok, but we are very much NOT.  We struggle daily, it’s just that some days the struggle is easier than others.  The following chart has the most common:

sympt2

What Are the Biggest Obstacles for Someone with Hashimotos?

  1. Lack of Adequate Medical Caredue to the general lack of information and research on our disease, most Hashimotos patients are receiving sub-par care.  Doctors will look at our blood work results, adjust our medication, and send us on our way.  They do not look at the root cause, the auto immune disorder.  Unfortunately, most of the doctors that will are not covered by insurance.  This puts many Hashi’s patients at a disadvantage for getting proper care.
  2. This Disease is, in Many Ways, Totally Out of My Controlmany Hashi’s patients will suffer from symptoms that come and go as they please, which can lead to us canceling plans last minute because we are having a flare up.  Other symptoms stick to us like glue and are at times an impossible hurdle to overcome, like our weight or fatigue.   The medications that are currently on the market are not curing us, and often not even making us remarkably better.  They are really just helping us get by from day to day.
  3. This Disease is Invisible, Which Means We Get Judged A LOTby family members, friends, coworkers, and even health professionals.  You would be amazed at the cruel things people will say to us, because they lack any understanding of what we go through.  We get accused of cheating on our diets, or mocked for changing our diets, accused of being lazy, making excuses, blah blah blah.  These judgments hurt us to our core because, see number 2.
  4. This Disease Affects My Entire Bodyhead to toe, it is apart of my every day life and nothing is left untouched.  Hashimotos will affect your mental faculties, your hair may fall out, you will have issues with your dental health including bone loss in your jaw, you will experience swelling and discomfort in your neck, heart palpitations, your body will swell and diuretics won’t stop it, you will most likely suffer from some sort of food sensitivity, your libido will decrease, your muscles will ache, your skin will hurt to be touched, you may end up with balance and coordination issues, it can impact fertility, and the list goes on and on.  In fact there are over 300 possible symptoms and no two hashimotos patients are alike.

What Are We Learning About Treatment?

  • Integrative, Functional, and Holistic Doctors seem to have the best approach, because they look at the whole body.   However, most insurance companies do not cover these doctors leaving patients to foot the bill.  I have been fortunate that our insurance covers my doctor.
  • We need to ensure the proper blood work is being done which includes testing for thyroid antibodies, food allergies, vitamin and mineral deficiencies, hormonal changes, adrenal fatigue, and other autoimmune disorders.
  • Every patient will be different in regards to severity of disease, deficiencies, food allergies, symptoms, etc.  Thus our treatment will differ from each other, and this is figured out one step at a time.  Often we are throwing things at it, simply to see what sticks.  Therefore patience through the healing process is imperative.
  • Exercise affects our bodily differently, high intensity work outs can actually be detrimental to our weight loss because it puts our body under stress, which increases our cortisol levels, which affects our thyroid function.
  • Most Hashimotos (and autoimmune sufferers) will have LEAKY GUT and repairing the balance and health to your gut will help you feel better.  This often involves the removal of gluten, sugar, dairy and sometimes soy, corn for at least a year.  Your doctor (and your body) will help you know when you have healed.  Additionally the addition of certain probiotics will help the process move along faster, including the addition of lacto-fermented foods to help with inflammation (sauerkraut, kimchi).

Currently, I am seeing an INTEGRATIVE DOCTOR.  Under her care, we are addressing my Hashimotos from an whole body approach.  We are not just treating my thyroid, but also addressing the autoimmune component.  She is covered under my insurance, although my co-pay is a smidge higher than my primary.   Since every patient is different, just because this protocol is working for ME… it doesn’t mean it will work for you.  So please be sure to work through your condition with your doctor.  You are welcome to share my protocol with your doctor to discuss if any of these suggestions will be beneficial for you.  Please also note, that all of the following have been discussed with my integrative and are under her monitoring.

Integrative Protocol:

  • Gluten Free, Dairy Free, Sugar Free diet.
  • UPDATE:  Thyrovanz 100MG  (I was on Armour Thyroid 90mg, before that 125mcg of synthroid) 1xd
  • Hyrdrochlorothiazide 25mg 1xd
  • Potassium CL ER 10meq  1xd
  • Selenium 200mcg 1xd
  • 2500mcg Sublingual B12 (radiance brand) 1xd
  • 50mg Vitamin B6 (radiance brand) 1xd
  • 400mg Tumeric (radiance brand) 2xd
  • 5mg BioPerine (black pepper fruit extract) 2xd
  • 2000IU Vitamin D3 2xd (Sports Research brand w/ coconut oil)
  • Women’s MultiVitamin (Radiance Brand) 1xd
  • Calcium 600 w/ Vit D3 (Radiance Brand) 1xd
  • 1000mg Fish Oil (Radiance Brand) 2xd
  • Gluthathione 50MG 1xd
  • Black Cumin Seed Oil 500mg
  • Myo-Inositol 2000mg 1xd

*Radiance Brand is gluten free, preservative free, sugar free, dairy free, artificial color/flavor free, salt free.

* There is some crossing of supplements…. my Multi V, D3, and Calcium all have D3.  Since I am supposed to get 5000IU daily, between these 3 I get as close to that number as possible without going over.   Same with Selenium, it’s in both the Selenium supplement and in my Multi V.  However, combined I do not exceed the dosage amount my doctor desires.

Blood tests included thyroid levels, food allergies, vitamin/mineral levels, etc.

I am adding in iodized salt, b/c my iodine levels are are the cusp of being too low.

Root Cause Suggestions:

Protocol Suggestions from other Sources:

  • Kefir Water, Probiotic Water – OR – Kombucha Tea   (min. 2 oz daily, up to as much as you like.  It is recommended to work your way up b/c too much too fast gives a bellyache)
  • Saukerkraut or Kimchi (Lactofermented)  1TBS – 1/4C daily

Midwife Suggestions:

  • Jarrow Formula’s Adrenal Optimizer 1xd
  • Acidopholus 1xd

Acupuncturist Suggestion:

Root Cause suggested that acupuncture works for some Hashimoto’s sufferers.  I tried it for a few months, and I didn’t notice any improvements.  I’ve decided to delay further acupuncture treatments at this time.

  • 1000 plus Bee Pollen Complex (Radiance Brand) 2xd

Things I’ll Systematically Add This Year:

  • 3omg zinc
  • 1mg copper
  • 40oIU vitamin E
  • For when I travel and may not have access to Kefir Water or Kombucha, I’m going to purchase Food Science Mega Probiotic ND.

This year we are also looking into whether or not I am salt sensitive which could be having a huge impact on my weight.  God blessed me with a divine appointment by seating me next to two women who both suffer with thyroid disorders.  Each of us in a different stage of our fight to beat this disease.   The woman who was ahead of me, and able to shed a lot of her weight utilized “The Waterfall Diet” written by Linda Lazarides.  It is a book on how to control your water retention… swelling… and shed that water weight.  It’s a diet that is not life long, but rather a process of eliminating to their diet, with slow introductions over time.  I’m only a few chapters in, and I am checking off all of the signs and symptoms of water retention, and it even mentions in the book thyroid conditions causing water retention.  Unfortunately, if you are following the rules… you must read the book and not start the diet until you get to the end.  So, I have no results to share yet.

There are the books I have used in my own research, or have been recommended to me:

These are not affiliate links, I do not make money off of their sale.  I like to give visual references to help with shopping and direct links when possible.

hash1     hash2     hash3

 

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